Post-COVID (Long Covid) Resources
The effects of COVID-19 may not end with acute infection. For many, certain symptoms and conditions can persist for weeks to months, or even longer, after illness. Persisting conditions may occur in individuals of all ages and ethnicities who have varying medical histories and levels of severity of initial infection.
Symptoms vary in severity, and may include any of the following:
- Extreme fatigue
- Shortness of breath or difficulty breathing
- Chest pain or tightness
- Problems with memory or concentration (commonly referred to as brain fog)
- Difficulty sleeping (insomnia)
- Heart palpitations
- Pins and needles
- Joint Pain
- Depression and anxiety, mood changes
- Tinnitus (ringing in the ears), earaches
- General feeling of malaise (feeling sick)
- Diarrhea, stomach aches and cramping, loss of appetite
- Chronic fever or elevated temperature
- Changes to sense of taste and/or smell
- Body rashes
- Changes in menstrual cycles
- Other symptoms
These conditions can be mild or they can be significantly disabling and severely disrupt quality of life. The best way to prevent post-COVID conditions is to get vaccinated against COVID-19 as soon as you can.
The following resources have been developed to help individuals with Post-COVID conditions obtain the treatment, care, support, and information they need.
Post-COVID Care Centers in Massachusetts
Post-COVID care often requires a multidisciplinary approach. As more is understood about Post-COVID syndrome and its root causes, more treatment options are developed, trialed, and implemented.
Please note that these centers may require a positive test and/or physician referral in order to make an appointment. Each center offers different services.
|Mass General Hospital COVID-19 Survivors Clinic||McCance Center for Brain Health|
Consultation Services in neurology and neuropsychiatry to evaluate, treat, and conduct research on COVID-19 related neurological complications.
|Spaulding Rehab COVID Rehabilitation Program||Specialized, multidisciplinary care for rehabilitation of patients post COVID-19. Patients must have tested positive and received treatment for COVID-19 to be eligible. Program addresses ongoing symptoms that include but are not limited to shortness of breath, coughing, chest pain, joint pain, headaches, functional impairments, weakness and balance problems, deconditioning, dysphagia. Program also offers behavioral and mental health services for people with emotional and psychological symptoms.|
|Brigham and Women's Hospital COVID Recovery Center||Multidisciplinary COVID recovery center for patients with lingering symptoms and complications of COVID-19. Patients must have documentation of a positive PCR test or antibody test. |
|Beth Israel Deaconess Medical Center Critical Illness and COVID-19 Survivorship Program||Multidisciplinary long-term recovery: Patients who have survived COVID at any severity, who need assistance regaining quality of life after illness. Program designed for patients who have post-COVID impairments including but not limited to respiratory, neurological, and physical impairments. |
|Emerson Hospital COVID-19 Recovery Program||Multidisciplinary long-term recovery: Treats the physical and cognitive decline associated with COVID, including impairments to strength, cardiovascular system, mobility, speech, swallowing, cognitive ability. |
|Baystate Physical Therapy Post-Acute COVID Care||Utilizes Mount Sinai program model to provide a multidisciplinary approach to aid COVID patients in their COVID recovery. Physical therapy addresses mobility deficits such as those impacting stair climbing, activities of daily living, recreational tasks, work-related activities.|
|Boston Medical Center |
ReCOVer Long COVID Clinic
|Comprehensive care for patients who still have COVID-19 symptoms more than four weeks after recovering from initial infection. Multidisciplinary team comprised of different specialties from across the hospital. |
|Boston Children's Hospital Pediatric Long-COVID Clinic||Multidisciplinary evaluation and care of children with long COVID. |
Call 617-355-6832 for information and to make an appointment.
Support Groups and Organizations
- Survivor Corps: Survivor Corps is the largest grassroots movement in America dedicated to connecting, educating, and supporting those affected by COVID-19. Survivor Corps supports ongoing research aimed at improving understanding of COVID-19, both in the context of acute and chronic symptoms.
- Survivor Corps Facebook Group: Public Facebook support group for those affected by complications and symptoms of COVID-19, long COVID. Family members and loved ones welcome.
- Body Politic: 11,000 member support group and advocacy campaign. This group provides its members with emotional support, resources, community, and opportunities for advocacy.
- Long COVID Alliance: Network of patient advocates, scientists, disease experts, and drug developers. Mission to educate policy makers and accelerate research on long COVID and post-viral illness.
- Long COVID Kids: Mission to raise awareness and support for long COVID syndromes in children. Participates in ongoing research in pediatric post-COVID symptoms. Parents can seek support in an online forum, as well as report symptoms that their children have experienced.
- Spaulding Rehab Virtual Support Group: For those who continue to suffer from ongoing symptoms of COVID-19. Interactive group guided by a licensed mental health counselor. Must be 18+ years old, and either have a diagnosis of COVID-19 or be a caregiver/loved one of someone with COVID-19. Free of cost.
- MCAS (Mast Cell Activation Syndrome) and COVID-19 Coronavirus: Facebook group for individuals who have MCAS and have also had COVID-19. Members can share their experiences with COVID-19, read others' stories, and have an opportunity to connect with peers.
Current Research and Information
- Survivor Corps
- Visit website for current information about Post-Covid Conditions
- National Institutes of Health (NIH)
- RECOVER (Researching COVID to Enhance Recovery)
- Scientists and study participants are working together to learn more from research on Post Acute COVID Syndrome.
CDC COVID INSPIRE Study (NEW! April 2022)
- The CDC is seeking participants for a study called the Innovative Support for Patients with SARS-CoV-2 Infections (INSPIRE). The study aims to gather information about long-term effects of COVID-19. Participants will describe how they are feeling by completing online surveys and share their medical information through secure, confidential, cloud-based platform.
- Eligibility criteria:
- Must be 18 years of age or older
- Suspected COVID-19 symptoms within the past 6 weeks
- Test for COVID-19 within the past 6 weeks (regardless of test results)
- Access to a smart phone, tablet, or computer device with internet
Are you aware of other resources and information that could be added to this page? Please email Vivian Franklin, RN at firstname.lastname@example.org.
Do you have questions about COVID-19 and Post-Covid Conditions? Questions you have about your specific symptoms may be better answered by your primary care provider and/or a healthcare organization that provides Post-COVID Care.